Since we began therapy, Colt has been doing so much! Although he still hasn't mastered rolling over, he is moving around in every other possible way. I think that it's just going to take a few more weeks of trying and he'll get where he wants to be!
We see neurology on the 6th, and I am so ready to hear what his doctors have to say. He has been seizure free since September 10 and I think that is a HUGE DEAL! From what I have read from other 1p36 families, seizures are often frequent and hard to control. I thank God daily that we do not have that worry right now. After that appointment, we have cardiology in March. Other 1p36 families that I follow do not mention many heart concerns, so I'm wondering if that aspect of Colt is different from the rest.
Colt's night/day confusion is still a big issue here at home. He is so wide awake at night, especially the hours of 2-4 a.m. I still haven't been able to figure out how to fix this one, I just hope that one of his doctors can help us with a non-medication solution.
All and all, things are great for us and Mr. Colt right now :)
Sound asleep!
Matching racoon toboggans!
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